| Nebraska became the first and only state to create a Parkinson’s
disease registry as a result of 1996 legislation. The registry provides information about
the incidence of the disease in Nebraska. During the 2001 Legislative session, the law
creating the Parkinson's Disease Registry was briefly repealed, however LB152 revived the
Registry and gave the DHHS the responsibility to continue all operations. Terminated in
October 2004, the Registry was reacivated February 1, 2006. |
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| The Parkinson’s Disease Registry Advisory Committee
meets each December. Members of the Advisory Committee represent consumers, researchers,
and medical and pharmaceutical professionals. Only new Parkinson’s cases diagnosed
since January 1, 1997, are required to be reported, but the registry also includes data on
persons who had a diagnosis of Parkinson’s prior to that time.
The Registry is a database that can be utilized to achieve the goals of statistical
identification for research detecting the incidence of and possible risk factors
concerning Parkinson’s, planning for health care requirements, education of health
care providers and hopefully a cure for the disease. The law which created the
Parkinson’s Disease Registry specifies that information may be released to approved
researchers. Several research projects are either pending or already in progress. |
